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Complex care

Children’s Complex Health Team

The complex health team comprises of 5 experienced children’s nurses and a health visitor/midwife. The team offers a range of services, support, clinical training, managing personal health budgets, alongside monitoring, and commissioning some packages of care. The Designated Clinical Officer is part of our team.

Our greatest partners are our children, young people, and their families and our team remain committed to providing personalised care for children and young people based on their identified individual needs.

The team works in conjunction with practitioners from all areas of health, primary care the hospitals trust, specialist children’s hospitals, speech and language, other allied health professionals and young minds matter, social care and extensively with education, and supports a multi-agency approach to ensure the best outcomes for children and young people.

The team can be contacted by telephone 01472 323660.

Designated Clinical Officer for SEND

Sarah Harding is the Designated Clinical Officer for Special Educational Needs and Disabilities (SEND) for North East Lincolnshire Clinical Commissioning Group (CCG). The role has been established to support colleagues in health, education and social care to ensure that children and young people with SEND, aged 0-25 years, have the right health support to achieve their aspirations and the best possible outcomes.

The role is varied and includes:

  • Supporting the CCG to ensure they are carrying out their duties in line with the Children and Families Act 2014.
  • Ensuring the flow of information between health services and the local authority Special Educational Needs Assessment and Review Team for Education, Health and Care Plans (EHCP)
  • Supporting health professionals to provide timely and quality health advice for  Education, Health and Care needs assessments and reviews
  • Supporting education colleagues by enabling access to health information for EHC plan annual reviews, signposting to appropriate services, and supporting pupils with medical conditions in school
  • Attending the Special Educational Needs Advisory Group (SENAG) panel as the health representative
  • Supporting the local authority Special Educational Assessment and Review team (SENART) with health queries
  • Signing off and quality assuring health information in EHC plans
  • Working alongside children, young people, parents/carers, professionals and commissioners to identify gaps in health service provision
  • Working with the Local Offer Coordinator to ensure we have up to date and accessible information about health services

Sarah can be contacted by email at designatedclinicalofficer@nelincs.gov.uk or by telephone on 07923221410.

Children’s Continuing Health Care

NHS continuing health care provides funding for packages of health care and support for children and young people under 18 years of age  whose complex health needs cannot be met by universal or specialist health services, because of their disability, an accident or illness.

Government guidance recommends that wherever possible, continuing care for a child or young person should be provided in their own home. It can also take place in a residential placement or hospice. If you think your child should be assessed for NHS continuing care, talk to a health or social care professional who works with them. Professionals will offer an assessment if your child has continuing health needs.

The process for continuing care has three phases.

  1. Assessment
  2. Decision making
  3. Arrangement of provision

Once the assessment has been completed you should get a decision within 28 days. If eligible, a member of the Complex Health Team will then meet with you, your child and the professional who assessed your child and discuss and agree options for supporting your child. Each package will be developed around your child’s unique needs and you will be advised of the value of the budget. Personal Health Budgets are available, and this will be discussed fully with you when developing the package.

Children’s continuing health care is different to adult continuing health care, there is an established process for transition to adult continuing health care for children and young people.

If you wish to contact a member of the complex health team to discuss this, please do so on 01472 323660.

Further advice and information can be found on GOV.UK – Continuing care national framework.

Personal Health Budgets

A Personal Health Budget is an amount of money to support a child or young person’s individual complex continuing health needs which has been identified, assessed, planned, and agreed between the child/family and the Complex Health Team.

Children or young people who meet the Continuing Care criteria will in North East Lincolnshire always be offered a personal health budget, and whilst that may feel challenging help and support are available through the complex health team.

Personal health budgets can improve people’s quality of life and their experience of care, by helping people to have more choices and flexibility about how their healthcare needs are met.

There are three ways you can have a personal budget:

  • direct payments made into your account – you buy and manage services yourself
  • no actual money as the local NHS service has commissioned support on your behalf
  • third-party arrangements – you choose someone else to manage the money for you

If you feel your child meets the criteria for continuing health car or wish to discuss personal health budgets for children with someone please contact the complex health team on 01472 323660.

Further information can be found on England NHS – Personal Health Budgets.

Children’s Nurse Educator

An Advanced Registered Children’s Nurse Practitioner will support Personal Assistants in continuing health care packages by ensuring that they receive appropriate clinical training, supervision and are confident and competent to care for your child. Personal Assistants will have to undertake updates and refresher training to ensure they remain competent. Once in place care packages will be reviewed at 3 months by the Children’s Nurse Educator and then further review as agreed, or as needs change.

The Children’s Nurse Educator can provide clinical support and training for any practitioner who supports your child with continuing health needs, for example school, nursery, or residential setting so that your child has seamless, competent support throughout their day.

Once your package of support has been agreed the Children’s Nurse Educator will contact you regarding Personal Assistants and training needs.

The children’s nurse educator can be contacted on 01472 323660.

Complex Health Nurse

The Complex Health Nurse will assist and support with continuing health packages, development and implementation and will review the needs annually.

Working alongside other members of the complex health team, designated clinical officer, social care, children’s community nursing and acute health services to support children and young people with complex health needs in mainstream school settings where health interventions and clinical needs provide challenges to children and young people accessing their education.

The Complex Health Nurse also supports the Nurse in School at Humberston Park School.

The complex health Nurse can be contacted on 01472323660.

Nurse in School (Humberston Park)

There will be a registered children’s nurse in school on a 5 day basis to cover and support significant clinical needs in school, this will support children and staff in school to ensure complex clinical needs are well managed, clinical training is maintained and provides a clinical link into acute or primary health care services. They will support education staff in updating health plans, and where appropriate education health and care plans.

The nurse in school will also conduct audits of education, health, and care plans in some mainstream settings.

The nurse is not in school to provide acute clinic services such as the school clinic, this will be covered by acute services.

The nurse in school can be contacted by ringing school and asking for the nurse on 01472 590 645

Please be aware during the covid pandemic all team members are where possible working from home. Therefore the 01472 323660 contact number should be used this will put the call through to admin who will take your details and email the relevant team member who will respond and get back to you as quickly as possible.

St Andrew’s Hospice

St. Andrew’s Hospice offers 24 hour care and support for children, young people and their families who have progressive life-limiting or life-threatening conditions.

It provides palliative care in a friendly home-from-home environment for children and young people from birth to 25 years of age who live in the Lincolnshire and Hull and East Riding areas.

St Andrew’s Hospice

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